IM HAVING A HARD ENOUGH TIME WITH WHAT I TAKE NOW! I am on NP with an additional Synthroid to balance me out. Flush the toilet two times after each use. A swollen or tender neck and feeling flushed. But what if you only destroy 30 to 40% of your gland function? Radioactive iodine is created when the unstable atoms of radioactivity is piggybacked onto iodine so it will be absorbed by the body. Doctors made me think it was my only option at the time. I cannot take anything other than porcine thyroid with rice flour as filler (compounded). And Ive become Flat with my emotions now. Here are some ways to minimize radiation risks to other people (and pets) after you have had RAI treatment: Stay at least six feet away from other people, including members of the public, family members, and co-workers, for three to 11 days. I have since been on a roller coaster ride with the levels fluctuating up and down and not sure why. P.S. Iodine (chemical symbol I) is a chemical element. Now the top of my hair is thick and fine and the back of my hair is thick and curly it has a little bit of wire feeling to it. Your TSH should always drop as you increase your thyroid dose and you should aim to get that TSH around the 1.0 range (which is considered normal in healthy adults). In the mean time, thanks to the WWW. A thyroid scan is a type of nuclear medicine imaging. I had a lot of hair loss right after my thyroidectomy. The radiation will pass out of your body through your urine within days. 08 July, 2011. I eat all organic. In your case, these would be best: https://www.restartmed.com/product/thyroidectomy-rai-bundle/. Hi doc! I feel horrible. Radioactive iodine is a treatment for papillary and follicular thyroid cancers. I am considering following up with the endocrinologist in the morning. It is a good idea to increase your fluid intake after an imaging exam involving an iodine-based contrast material to help remove the contrast material from your body. It has to do with how important your thyroid is in regulating your metabolism and your weight. If you destroy the entire gland then you will definitely need to be on thyroid medication. If you are unable to avoid direct or indirect contact with infants and young children, ask your healthcare provider about the possibility of hospitalization. I was recently on Naturethroid for some years and it seemed to be a better choice for me, it was quite the battle to get the Drs to prescribe it. The radiation comes from a radioactive substance called iodine-131. The doctor started me on .50 of Synthroid, and taking the first dose my eyes cleared the next day. Thanks look forward, Yes! Hopefully, you're now a lot closer to figuring out what color you should dye your hair. Since I was at the office a week ago complaining about what PTU was doing to my body I feel nervous about calling the endocrinologist again. The list includes optimal ranges, normal ranges, and the complete list of tests you need to diagnose and manage thyroid disease correctly! Hi Dr. Childs, Im worried more about loosing my hair than my life. The good news is that this radioactivity does fade over a short period of time (usually 5 to 7 days) but the bad news is that you need to stay under certain precautions during this time. The issue now is that I have no refills on the levothyroxine and have not had any blood work in about 2 years. After Your Radioactive Iodine Treatment Getting home. You might need contrast when you are having an X-ray, CT, MRI, or ultrasound exam. But you probably at least know a little bit about RAI or you wouldnt be here. Follow me on Facebook, TikTok, and Instagram for up-to-date thyroid tips, tricks, videos, and more. The radioactive iodine uptake test (RAIU) is also known as a thyroid uptake. Hi I had RAI 20 plus years, I am 56 and my numbers are good. (Pat). Or longer I also happen to formulate the best supplements on the market (well, at least in my opinion!) Some people, however, may have further trouble after their treatment and suffer from weight gain, hypothyroid symptoms, and other issues. I was put on Levothyroxine 175, then when I met my endocrinologist, by that time TSH levels had dropped some so Levothyroxine down to 137. You can get by this side effect by simply banking some of your sperm prior to your procedure and then using that sperm at a later date with procedures such as intrauterine insemination. I had this feeling when I went into surgery last Tuesday, but shrugged it off as just my fears in over time. If contrast dye is used, you may feel some effects when the dye is injected into the IV line. My health is anything but wonderful. Please help! Protecting Your Family After Radioactive Iodine Treatment. So, if papillary or follicular thyroid cancer has spread to any other part of the body, we can still use this therapy to find and destroy it. biotin or a hair and nail vitamin might be good. Some doctor told me to move to the mountains, which I did to avoid toxic chemicals. Radioactive iodine may also affect a woman's ovaries, and some women may have irregular periods for up to a year after treatment. When they injected RAI contrast dye through an IV for the test, I went in shock and they stopped the testing until later that day. OR IT WILL BE GIVE ME PROBLEM? Radioactive iodine therapy is a type of internal radiotherapy treatment for thyroid cancer. Get my free thyroid downloads, resources, and PDFs here. In the mean time, Im feeling worse about myself than with this original post. Radioactive iodine is absorbed and concentrated by the thyroid gland. 12 noon, lunch and VS with glucose readings. A single injection is given subcutaneously (i.e. If you will be traveling via airplane or crossing an international border in the period following RAI treatment, you must be provided with a written document from your healthcare provider stating they you have been given a medical treatment involving radiation, as security monitoring devices can detect it. You can opt-out at any time. Muscle pain or weakness. So, do your research, make sure RAI treatment is right for you. I had RAI about 39 years ago and every year Im tested for my TSH level which always seems to be in the normal range. Told to me by each and everyone whos never had this cancer! I had severe and sudden weight loss along with many other troubling symptoms. The I-131 leaves your body through your urine primarily. I had an RAI about three years ago, due to hyperthyroidism. Then PCP wants B/P readings and daily weights. Whatever touches your skin will pick up a small amount of radiation. So I had the ablation without much research on my own, and now Im at the highest weight of my life and miserable. I hope this post is still active. Since then I have suffered most every day with severe chemical sensitivity. Pls.can u explain about this. I have AFib and concerned for my heart about going into the obese stage. can i color my hair after radioactive iodinehtml5 interactive animation. Symptoms of a moderate or severe reaction that require urgent medical care include: Severe vomiting. You usually take radioactive iodine as a capsule that you swallow. Radioactive iodine treatment is a therapy that your veterinary surgeon may recommend if your cat is diagnosed with hyperthyroidism. Potassium iodide (KI) is a type of iodine that is not radioactive and can be used to help block one type of radioactive material, radioactive iodine (I-131), from being absorbed by the thyroid. In regards to your question, its normal to feel terrible if your TSH is so high, but its not normal for your doctor to try and not optimize this level. It is a measurement of thyroid function, but does not involve imaging. I had a miscarriage about a year after the RAI treatment. 8.1, Because I began feeling very unhealthy this week further blood tests were done. I am 70 years old and I am beginning to worry. Its impossible to predict how any one person will react to any given treatment or operation but the available research suggests that those who go into the procedure overweight are more likely to gain weight afterward. Will destroying your thyroid gland have long-term consequences? I would recommend that you read this article for more info: https://www.restartmed.com/normal-thyroid-levels/. Currently they have me on a combination of 100mcg Synthroid with 1 Grain of Armour (60mg. My endo physician would not increase the dosage so I went to my G.P. They do this by either stopping your oral thyroid medication or giving you thyrogen. Its definitely possible it just takes more time and the weight loss is slower. I have not lost any weight. 1-2 Capsules of Leptin Resistance RX daily https://www.restartmed.com/product/leptin-resistance-rx/. Use disposable dishes and place them in a specially marked plastic bag for disposal. A large study found an increase in some cancer types in people who had radioactive iodine treatment for hyperthyroidism compared with the general population. He may be the one with that piece of paper that says he can prescribe and administer that damned pill, but I have a gut feeling hes too cavalier about it all. The good news is that not every single person who gets RAI will necessarily gain weight. That may not be the best decision, but I was becoming very depressed. Iodine-131 (I-131) is radioactive. After all, didnt the radioactive iodine work to reduce your overall thyroid hormone production? Importance: Patients who undergo radiographic studies with contrast receive an enormous bolus of iodine. Radioactive iodine is a procedure that is often used to treat hyperthyroidism. It sounds like you are being underdosed based on your TSH level. However, all of these symptoms are also part of the menopause for which I now take HRT. Will you be able to maintain your current weight? Iodine is also sometimes prescribed as a topical treatment for certain conditions that cause hair loss on the scalp. I am going in for radioactive iodine treatment next week and wanted to ask what the best diet plan is that can stop me gaining more weight and help me to reduce my bmi. Many clinical studies have also confirmed that weight gain after RAI is a real risk. As I am not a doctor, my specific question is why does the level of levothyroxine I require change if my thyroid was destroyed? So is there any possible way to lose weight after the Radioactive iodone treatment or is it pretty much an absolute lost cause? After years of somewhat of a normal feeling with the Naturethroid I received a letter saying they were taking it off the market. My doctor has changed my meds 5 times I was doing better if my medication was a little on the high sideI had started to lose wait, had more energy & the best ever NO SWEATS, but she said no, WHY! However, I havent been placed on any med after treatment what is your professional opinion. In most reports, the side effects include contrast dye allergy reactions, hyperthyroidism, and contrast-induced nephropathy accumulation of metformin. Can You Eat Soy If You Have a Thyroid Condition? A small portion of radioactivity will be found in your saliva and sweat. People who do have hyperthyroidism tend to have a fast metabolism, but the treatment for hyperthyroidism (the medication you are taking) slows down the metabolism dramatically which leads to weight gain. But, if I was being honest, I think that most people should not rely on the possibility of restoring much thyroid function after their procedure. I had never been to endocrinology prior and had no idea about thyroid function. U.S. Nuclear Regulatory Commission. hisc hose nozzle parts. Because it changes how you should be thinking about your medical condition, it changes the types of natural treatment options that may be available to you, and it changes your treatment. One doctor wants a monitor of pulse five times daily, hes concerned about para thyroid damage. After that they again were having the same symptoms. There are 37 known isotopes isotopesA form of an element that has the same number of protons but a different number of neutrons in the nucleus, giving it a different atomic mass. Just realize that you will always be in a sensitive category and you will be more likely to gain weight compared to people with their thyroid intact. Radioactive iodine ( 131 -I) is a radioactive isotope that is administered orally, in a liquid or capsule form. Can Hashimotos Be Reversed? So, if I go to bed earlier, I have to set my alarm clock to get up to take the damn pill, then have a hard time to get back to sleep, then just when I do fall into slumber, its time to get up and going for the day, and take a list of other meds, and monitor VS and glucose readings. People may take RAI . #3. You should have your thyroid lab levels tested to see if you need medication. Hi,I have awhile to have enough hair to dye.I also have another 4wks. Radioactive iodine does not produce hair loss. Iodine is essential for proper function of the thyroid gland, which uses it to make the thyroid hormones. They all tell me Thyroid Cancer is the easy cancer. The trip will be about 45 minutes each way. Homocysteine down to 11.5, methlymalonic acid down to 257. Radioactive Iodine. I saw 2 eye professionals. The symptoms of hyperthyroidism presented themselves very quickly and I was very sick when I had the ablation. Doctors use nuclear medicine to diagnose, evaluate, and treat . I have a quick question. 8PM HS snack and VS and glucose readings. They may even preemptively schedule you to start thyroid hormone treatment within a few weeks of the RAI procedure, just to be safe. of radiation.But I wonder after that if I can dye my hair.Unforuntly it is coming back completly gray.I will be thankful to have hair.But I don,t look good with gray either.I know some people do.Someone said they thought you had to wait a year.I hope their wrong.Thanks for your replys. Hair that is not being treated directly with radiation can be dyed. Before you or any family members have RAI treatment, it is strongly recommended that you read up on post-RAI guidelines and speak with your healthcare providers about how they should be applied to you. If so, what are you struggling with? This isnt always true, but it is true for MOST people. If you have heard of this before is there a natural vitamin or something that will help me control the heat in my body? Check out my own personal health story. Radioactive iodine. This is an FDA and EMA approved drug used for the treatment of thyroid cancer refractory to radioactive iodine treatment, renal cell carcinoma, and hepatocellular carcinoma. what is the normal amount of time a person needs to be off thyroid supplemental medication before the radioactive iodine treatment is done? What type of cancer is treated with radioactive iodine? The most common side effect of radioactive iodine treatment immediately after it's been administered is that you will feel very tired for the first few days after the treatment. The study followed people for 26 years after two or more treatments. Um, Im a night shift nurse on a dementia unit in a nursing home, would you want me taking care of your loved one and have the brain fog, the jitteriness, the irritableness, and depression? My supplements can help but they will not take the place of thyroid medications like levothyroxine. If your head and scalp are exposed to radiation (usually after a brain tumor surgery), it can affect the hair follicles and cause hair loss while the rest of the body may be unaffected. Taking a safe nascent iodine supplement may boost hair health and growth in the . I am in a gym 3 days a week I do water therapy/aerobics 3 days a week and I still cant lose weight I try to eat a low calorie Healthy diet Mostly either paleo or keto and no matter what I do I still cant lose the belly fat. I have spoken to my doctor about it but he doesnt care. Nevertheless, hair loss can be associated with changing levels of thyroid hormone, and may be experienced by some patients with hypo or hyperthyroidism. Be particularly careful around infants and children, who are especially at risk for exposure complications. I fall backwards with no explanation other than car exhaust in my air space, with some injuries as a result. My TSH is very low but my free T3 indicates my body isnt using T3. Take care in washing, treating and grooming your hair. It turns out that thyroid hormone is actually necessary to not only thrive in life but also to survive. It targets VEGFR, BRAF, and RET tyrosine kinase and inhibits the proliferation and angiogenesis of cancer cells. Yes, absolutely. Havent met yet my endoc after the RAI. Thank you If you dont have thyroid hormone at all then you risk the chance of coma and death. Rarely, people can feel pain in their neck. Five years later I was diagnosed with a severe case of Graves and the doctor said RAI was the best course of action and convinced me of that. While I was taking Levothyroxine If it doesnt go away then you have your answer, and if it does go away then you also have your answer. Another problem Ive faced is I ask one doctor about this or that feeling Im having and I get told that doctor doesnt deal with that have to tell the other doctor, I tell the other doctor and they tell me I have to tell another doctor because they dont deal with that issue. It is also called radio iodine. Because of PTC, I had a total thyroidectomy two weeks ago and now on Levo. I had RAI treatment year 2010, and now I am taking levothyroxine for my hormonal replacement since I am considered as hypothyroid patient. Theres no way to tell if your eye symptoms are related to your thyroid without first trying to optimize your TSH (which should be your next step). I am feeling all the emotions you described, depression is a big one, but all anyone is interested in is giving me another pill to make me happy again. I have battled my weight since I was a child, I had dropped from 400 pounds to 210 about six years prior, and was afraid all my efforts would be lost now. My entire life has been turned upside down. Fifteen years ago diagnosed with hyperthyroidism and had RAI. June 7, 2022 . Be wary of home-use products, and use recommended professional products for dye, highlights and conditioning. Now that you are considered to be hypothyroid there is a world of potential therapies, supplements, regimens, and protocols that are available to you. There isnt a specialist in the area of hormone balancing but you can use the resource above to help you find someone who can help you. I had RAI about 15 years ago and yes I have gained weight, less energy & I sweat a lot(buckets) doing nothing This content is strictly the opinion of Dr. Westin Childs and is for educational and information purposes only. Warren Janowitz Radiologist Miami, FL. How will I know if I am producing my own thyroxine? I had a partial thyroidectomy a week ago, (Right lobectomy) With this my Dr. noticed hard bumps in the tissue, and sent to pathology and cancer was found. Findings from a study of patients who received radioactive iodine (RAI) treatment for hyperthyroidism show an association between the dose of treatment . I have Graves disease and recently have a hyperthyroid flare up after being in remission, I went back on my meds but was recently taken off to see if I can do radiation. The real concern with radiation exposure to others in your family has more to do with them coming into contact with actual contamination. Dont let this be of major concern to you, though, because in most cases these symptoms can be managed. The thyroid is equipped with an active system or "pump" for moving iodine into its cells, where it is concentrated as iodide. Leave a Comment Cancel Reply . LH :4.12(1.70-8.60) What do you recommend? 2023 Dotdash Media, Inc. All rights reserved, Mary Shomon is a writer and hormonal health and thyroid advocate. My endocrinologist said he never heard someone like that after RAI, but i asked my cousin who is a family doctor back home that you will expect that will happened to you. Is there specialist out there that can look at your overall health history and help you get a regime that is right in regard to everything that is going on with you, i.e. Can you tell me about when I will start medication, or should I be tested first? who gave me 150 of Synthyroid. Thank Sharon. She is the author of "The Thyroid Diet Revolution. Gadolinium-based Contrast Material. rice and dries pasta. She said I am normal and not to worry. Since then, each year various GPs have looked at my thyroid function test results, focused solely on the low TSH reading and have now reduced my levothyroxine down to 100 despite my arguments to the contrary. Thank you, {{form.email}}, for signing up. 2022 Dr. Westin Childs | Thyroid & Health Supplements That Work Built withGeneratePress and powered by Kinsta. Unfortunately, the best way to prevent weight gain after RAI is to go into the procedure at a normal weight. 20 yrs ago. If your overactive thyroid symptoms persist 6 months after treatment, you may need a second dose. It seems though that people who are already overweight BEFORE their procedure probably have the worst outcome and tend to gain the most weight compared to others. Fortunately, most patients experience reduced symptoms about a month after treatment. So I have graves disease but was only diagnosed because I was actually gaining weight. I am gaining weight! Methimazole Side Effects You Should Be Aware Of (What to Expect), Hashimotos vs Graves Disease: Differences & Similarities, read more about my own personal health journey, free thyroid downloads, resources, and PDFs here, https://www.restartmed.com/hyperthyroidism-weight-gain/, https://www.restartmed.com/weight-loss-thyroidectomy/, https://www.restartmed.com/thyroid-doctor/, https://www.restartmed.com/thyroid-hair-loss/, https://www.restartmed.com/hormone-mastery/, https://www.restartmed.com/methimazole-weight-gain/, https://www.restartmed.com/product/thyroid-daily-essentials-thyroid-multivitamin/, https://www.restartmed.com/product/t3-conversion-booster/, https://www.restartmed.com/product/thyroid-adrenal-reset-complex/, https://www.restartmed.com/product/leptin-resistance-rx/, https://www.restartmed.com/normal-thyroid-levels/, https://www.restartmed.com/how-to-find-a-doctor-to-treat-your-thyroid/, https://www.restartmed.com/levothyroxine-thyroidectomy-patients/, https://www.restartmed.com/weight-loss-after-thyroid-removal/, https://www.restartmed.com/hypothyroidism-diet/, https://www.restartmed.com/product/thyroidectomy-rai-bundle/, 3 New Thyroid Support Supplements: Thyro Fuel, Thyro Biotic & Hashimotos Ab Rx, The 50 mcg Levothyroxine & Synthroid Medication Hack. Is there anything I can do to protect myself as I am driving her. I know I shouldnt be so vain, but honestly I am on this. This ThyCa has kicked my Gluteus Maximus but good! After your treatment, you won't be able to go home using public transportation, such as buses, the subway, trains, or a plane. No. depression, brain fog and other symptoms for years now. The cold also affects me if its too cold I really get cold but thinking back I pretty much think I was always like that with cold. SPECT/CT scan can contribute to establishing a final diagnosis in patients being evaluated for atypical locations of radioactive iodine accumulation after ablative doses of radioactive iodine, distinguishing between metastases from DTC and false positive accumulations or artifacts. Along with a pain and numbness in my right hand. 3 days after that I started to become sick after I ate an unable to sleep. Iodine is a mineral that your thyroid uses to create thyroid hormone. My only option for help is the ER which is somewhere I dont want to go with all the crap a going around. What will you really expect after your RAI, side effects Swelling and tenderness of the salivary glands. I welcome Barbara Lougheed, author of the book Tired Thyroid: From Hyper to Hypo to Healing - Breaking the TSH Rule. My eyes improved for a while but now seem to be getting worse. It Depends on These Factors, Add Back Therapy for Graves & Hyperthyroidism: When to use Levothyroxine, Hashimotos and Hyperthyroidism: Why it Happens & What it Means, How to Prevent Thyroid Surgery and Radioactive Iodine Ablation Therapy | Dr. Osansky and Dr. Childs. Created for people with ongoing healthcare needs but benefits everyone. If I have all of these symptoms and have had levels increase so much, is it worth seeing another dr due to my history or do you think this is normal? This can delay subsequent use of radioactive iodine (RAI) therapy because the iodine can compete for uptake. Thanks Doctor please, I had private clinic blood test after RAI sir this was the result:17 may 2017 :DHEA:11.020(0.44-13.00) This resource is dedicated to helping people with thyroid problems, hormone imbalances, and weight loss problems get the help that they need. I eat a diet free of inflammatory foods and exercise 3-5 times a week, but I cant get my weight to budge more than 5-10 pounds. Radioactive iodine therapy is a systemic and targeted treatment. Hyperthyroid Symptoms Checklist Do you Have an Overactive Thyroid? Im hoping I still have some thyroid function based on the fact that he kept lowering my dose of levothyroxine and I can just take your supplements and see some weight loss and feel a bit better. But my surgeon palpated three nodules and pathology report confirmed PTC, so a completion surgery was scheduled and performed this past April, and that lobe also showed cancer nodules on pathology report as well as some tissue purposely left because some cancer nodules had invaded my vocal chords. Iodine, an essential mineral, may affect hair health and hair growth through its effects on thyroid function. I was wondering can I color my hair at a salon. These symptoms are not caused by the procedure itself but rather a consequence of the damage of the thyroid gland and the inability of your body to produce thyroid hormone. I was being treated for hypothyroidism and graves . I love to write and share what I've learned over the years. Consuming excess iodine: If you're at risk for hyperthyroidism and consume too much iodine (through your diet or medications), it can cause your thyroid to produce more thyroid hormone. If weight loss is your primary goal then I would take a look at my weight loss program here: https://www.restartmed.com/hormone-mastery/. I feel more like a ping pong ball being bounced back and forth! Radiation can be measured around your body and I-131 is present in your skin oil and sweat. Our website is not intended to be a substitute for professional medical advice, diagnosis, or treatment. So I stopped going. I had RAI treatment nearly 2 years ago, and deeply regret it. For more details, see our Privacy Policy. The following recommendations will give you an idea of precautions to take to avoid exposing other people (as well as pets) to iodine 131, which may be present in bodily fluids or occur as a result of close contact. Contrast distinguishes, or "contrasts," between organs, tissues, bones, or blood vessels during your imaging exam. Until that time, you will give off radiation in your sweat, your saliva, your urine, and anything else that comes out of your body. The connection between your weight gain and hyperthyroidism is explained here: https://www.restartmed.com/methimazole-weight-gain/. Life has been very difficult as I basically go very few places now and live a life with little social contact. A better option might be to try just a partial thyroidectomy or to take out just the half of the thyroid with the cancer. I would actually think about taking chances with the cancer instead of gaining weight. Free T3. Contact: NCI Press Office. Ive certainly seen some patients reduce their total dose of thyroid medication by undergoing some natural therapies to help restore thyroid function after RAI (but the number of patients Ive seen in this category is somewhat limited). Sleep apart from adults by at least six feet (a separate bedroom is recommended) and avoid sexual activity.

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